It seems everyone is doing it these day, whether it's as a 'release', an outlet, for therapy, for exposure or just because. So here I am. I'm blogging! I have no idea how to add details in the 'About Me' tab or what these gadgets or widgets mean but I'm sure I will work it out along the way!
During a lazy lunch with some beautiful friends in which I was re-telling the details of my latest flare (more on that later), it was put to me that it might be time to 'sexy-up' Crohn's and start a blog! So here it is. I want this blog to be a place to tell my personal journey, a place for me to talk about me and my experience with Crohn's Disease and most importantly get the message out there that it is ok to talk about inflammatory bowel disease and not something that needs to be swept under the carpet.
I have Ileocolonic and perianal Crohnn's Disease. A chronic inflammatory bowel disease. It primarily causes abdominal pain, diarrhoea (which may be bloody if inflammation is at its worst), vomiting and weight loss. It may also cause complications outside the gastrointestinal tract such as skin rashes, arthritis, inflammation of the eye, tiredness, and lack of concentration.
This is a disease that cannot be made 'prety' with pink ribbon, breasts, bras or butterflies, but it is real and affects males and females at a rate of 5 in 100,000 people. Occasionally it can affect more than one member of a family. Both adults and children may have Crohn's disease, but there are peaks of incidence around 25 and 65 years of age.
Talk to any mum of a child in nappies and they will be able to re-tell all the in's and outs of their little ones bowel movements from the moment they were born. For some reason society can accept this kind of conversation but is completely repulsed by any sort of talk about their own bowel habits. We are extremely embarrassed by something that is firstly out of our control and secondly done by every single person (including the Queen!) on this earth! I'm not saying that we all need to divulge these details to each other on a regular basis but to know that it is ok to discuss these issues with with supportive friends or family if you need to. Nobody should suffer in silence.
I have lived with Crohn's most of my life and will continue to post about my journey and current prognosis. My goal is to get awareness out there about the disease. Early detection means getting the treatment and support you need.
Until next time...
Jem xo
Hello Jemma, I came to here by your comment of facebook.
ReplyDeleteWelcome to blogging my dear I hope you love it xox
ReplyDeleteHey Jemma, I saw your blog via Margaux Parker on Facebook! I look forward to reading your updates. I suffer from IBS and have been tested for inflammatory bowel diseases, including Crohns so I know a little bit about it, and can relate in the sense that I have bowel issues, but I'm not afraid of it and I don't hide it and all my friends know about it. I was recently diagnosed with cervical cancer and have a blog about that.... You will love blogging and find it as a good way of educating, explaining, raising awareness and just sharing your thoughts :)
ReplyDeleteGoodluck with everything
Chelsea
Love it Jem. Congratulations on getting the issue out there! It's all about making people aware. You are doing such a brave and wonderful thing!
ReplyDeleteMuch love xo
Love the blog Jem! I will be keeping an eye on this. If you have questions, ask me 'cos I have a blogspot blog too (www.dailytwinkle.blogspot.com) so might be able to help you. Good for you. Will I see you Thursday morning at Hudson's? Am working two days at my old job! Thu and Fri. xxxx
ReplyDeleteThankyou all so much for your support! It really does mean more than you know to me. Chelsea thankyou for sharing. I hope you are doing well at the moment and I will be sure to follow your journey too. I wish you all the very best with battle ahead.
ReplyDeleteJen-I love your blog. I read it all the time. And I'll be sure to see you Thursday!
And Krystle just thankyou-you know.
xox
Go Jemma! I look forward to reading all about this!
ReplyDeleteCan't wait! And for the record, I love talking about poo!
ReplyDelete