As I walked through the front doors of the much too familiar hospital yesterday, the knot in my stomach twisted just a little more. Hoping for answers, an action plan...a miracle...
Well here's how it went.
As always upon arrival the nurse took me to the 'weigh station' and gave me my weight on a post-it to hand to Dr R. Then the clinical nurse sat me down to check how things where going and had me complete what can only be called a Poo Chart for the last 7 days.
'How many loose or liquid stools have you had over the last 7 days?' - 0
'On a scale of 0-5, 0 none, 5 severe, how much abdominal pain have you had over the last 7 days?' - 0
'On a scale of 0-5, 0 well, 5 poor, how has your general well being been over the last 7 days?' - 1
I have been well. Abit tired but aren't we all.
She lets me know that she has cancelled my future Infliximab infusions and that she has my blood results from the day before then ushers me back to the waiting room to wait for Dr R. I know he always runs late. I'm sure the ticking clock was mocking me.
After a lengthy consult the outcome is this-
It seems that my infliximab (my treatment for my Crohns) has caused this Granula Hepatitis in my liver. My bloods show that my liver enzymes are slowing returning to normal without any treatment which is great.
I am currently off all medication and will continue to have regular blood tests until the liver enzymes have all returned to normal. Then I will restart my daily 6mp medication. As for my infliximab, it seems I have seen that last of it. Dr R explained that it is the anti-TNF properties of the drug that has probably contributed to this. There is another drug available called Humira but it is also an anti-TNF drug. There are a couple of drug trials that I could look at and Ive been sent home with some information about 1 of them. But for several reasons this isn't something that I want to take part in right now.
SO, for now it seems I am back to waiting but as long as I keep well I will be happy.
xox
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